Toddler Trials

Do you ever look around at all the other kids doing things and think why isn’t my kid? I’ve decided that whether you have a PKU kid or not, comparison is inevitable.

Why wont my kid drink out of a sippy cup?

Why isn’t my kid walking yet?

Why doesn’t my kid say that word?

Should my kid be off baby food by now?

All the million questions that surround every Mom and Dad at some point, but I feel we (PKU caretakers) overanalyze day in and day out.

Well I am here to put some of you other PKU Mom and Dads at ease:

  • Boston is 15 months & just recently walked at 14 months.
  • He still drinks his formula out of a bottle.
  • He pretty much HATES his sippy cup.
  • He eats a lot of the same things everyday.
  • I just recently took baby food away from Boston because I had a hard time getting in his phe without it.


When we are at restaurants I feel like people are looking at us like, why is that toddler still on a bottle??


I’ve talked to lots of other PKU friends who have dealt with these same issues. SO I am here to reassure you that our kiddos will grow up to be perfectly healthy, so who cares if he/she is 4 and still drinking their formula from a bottle—at least they are drinking it. Which is the most important thing for our sweet babes.

We can’t be so hard on ourselves as parents; I mean after all we still have teenage years ahead. 😉

I wanted to share what Boston currently eats so it may help you as you are preparing your toddlers meals.

Main courses:

  • Sautéed mushrooms
  • Sautéed zucchini and squash
  • Corn
  • Potatoes
  • Carrots
  • Green beans
  • French fries
  • Tater tots
  • Mashed potatoes
  • Sweet potatoes
  • Vegan egg
  • Pears (fruit cups)
  • Peaches (fruit cups)

*We try a lot of fruits, but his diet is so bland that he sometimes finds them too sweet. He will love them one day!*


  • Lil crunchies
  • Grabber (fruits)
  • Honey graham crackers
  • Gluten free pretzels
  • Veggie straws
  • Dried fruits

These are just a few things we LOVE at the current moment, so I thought I would share it with you!

Best of luck through the toddler trials…



6 thoughts on “Toddler Trials

  1. We love our Baby Boston. As his Nana, I am proud of every one of his accomplishments, whether it is eating a new food or mastering a new skill. As a mother of three, I will offer one piece of advice to all of you new parents. ” don’t worry about the other folks– people talk because that is what they like to do.” ” you do what you think is best for your little one” Parents of PKU children are to be admired by all!


  2. My son is almost 2 and a half. We sill drink out of bottle in the morning and before bed. I have tried everything to get his formula in a cup! (Seriously….everything!) He walks over to the garbage can and throws the whole cup in, and asks for his bottle. I feel, if formula wasn’t so important, the bottle would have been gone a long time ago. He also has formula in a “gel”. He eats it mixed in applesauce throughout the day. That way, we do not have to carry formula, (and bottles) and the portion is so small, I figure it would be better for him when he’s older and in school!

    Thanks for sharing your article! 🙂


    • Amy, I know exactly what you mean. It’s not like you can take the bottle away and say “oh he will eat when he’s hungry” because he has to get all of his formula in. I am praying the older they get the more they understand the importance. I’ll be thinking about y’all and praying for y’all for the bottle/cup transition.


  3. Our PKU’er is 18 months – so close in age to Boston! We were able to transition him from bottle to the Camelbak kid’s cups with the built in straw. It probably worked so well because his older sister (non-PKU) has the same cup for her water. Eventually we want to switch to Thermos Funtainer – I’ve heard they keep things cold for a ridiculously long time.

    Our toddler is still really finicky about food, as was his sister. He eats veggie sticks (from Trader Joe’s), the breakfast cereal/porridge from Milupa, pasta (esp the Alfredo recipe from CFL), rice dishes (esp Herb Butter Rice from CFL), fruits + veggies, coconut yogurts… Some days he will eat two bites of something and that’s it. Another day he’ll eat three square meals, but that’s really rare. He drinks his formula without issue (and we actually add cow’s milk so he gets enough protein since most of what he eats is “free”), so I know he’s getting a good base from that. But hard to make these amazing PKU meals and have him not even try it (meanwhile his sister gobbles up the chix nuggets from CFL).

    Lovely to meet another sweet PKU family in the world!


  4. Our dietician recently just took my son, Ezra (1), off of his mixture of formula. So he went from taking in 40 oz of a Periflex/Gerber Good Start formula mixture to now only taking in 24 oz of Periflex formula only. She wants him to start table foods as well. Thanks for writing about this because I’m kind of in panic mode on what to feed Ezra. 😦 We’re already struggling. He’s allowed to have 500 mg of PHE from foods now and we keep only reaching 300-400 mg. I really have to get the hang of counting things and cooking the right stuff. It’s been so hard so far!


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